I’m not sacrificing my life to an illness
I’m not. I rearranged our room today. Got stuff sorted and organized and I may or may not have taken husbands dresser apart and took it outside. 
I’m sure he’s going to kill me but oh well. Anyways. I decided to take a bath because my back was spasming and I was cold. I opened the drain for the water to drain. I just sat there staring at my feet after all the water drained out. Then it hit me. I’ve been allowing my illness to basically sacrifice my life. I refuse to do that any more. I’m basically going to live my life like I am dying. If I’m gonna go down it’s gonna be in flames. There’s so much I want to do and be and live. I’m not living a life right now. I’m living around an illness. Ain’t happenin’ no more. Nope. That is all. Yay to bath tub revelations.
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You are stronger than you know and you have every right to live life to the fullest, no matter what that might be! Rock on.
I am so, so sorry to hear about how your illness is so badly affecting your life. As a person living wtih spina bifida, I can at least commiserate with how hard everyday living can be... and how scary every day is. If you ever need someone to just talk to, let me know. In the meantime, this message is WONDERFUL, and I'm so glad you're living your life to the fullest. It's a far, far better mindset to have than despair. :hugs:
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